Effy Vayena

ETH Zurich

Professor of Bioethics

Zurich, 8001

Switzerland

SCHOLARLY PAPERS

14

DOWNLOADS
Rank 17,787

SSRN RANKINGS

Top 17,787

in Total Papers Downloads

3,461

SSRN CITATIONS
Rank 41,162

SSRN RANKINGS

Top 41,162

in Total Papers Citations

14

CROSSREF CITATIONS

4

Scholarly Papers (14)

Actions:
Email selected abstracts
1.

Big Data, Health Law, and Bioethics: Introduction (Cambridge University Press, 2018)

Big Data, Health Law, and Bioethics (Cambridge University Press, 2018), Berkman Center Research Publication No. 2018-3, Harvard Public Law Working Paper No. 18-18
Number of pages: 15 Posted: 28 Mar 2018 Last Revised: 06 Jun 2018
I. Glenn Cohen, Holly Fernandez Lynch, Effy Vayena and Urs Gasser
Harvard Law School, Department of Medical Ethics and Health Policy, Perelman School of Medicine, University of Pennsylvania, ETH Zurich and Harvard University - Berkman Klein Center for Internet & Society
Downloads 924 (31,029)
Citation 1

Abstract:

Loading...

big data, predictive analytics, machine learning, health care, privacy, pharmacovigilance, discrimination, Internet of Things, IoT, Informed Consent, Patents, Intellectual Property, Ownership

2.

A Harm-Reduction Framework for Algorithmic Fairness

16 IEEE Security & Privacy 34 (2018), Berkman Klein Center Research Publication No. 2018-3
Number of pages: 21 Posted: 17 Aug 2018
Micah Altman, Alexandra Wood and Effy Vayena
Center for Research in Equitable and Open Scholarship, Harvard University - Berkman Klein Center for Internet & Society and ETH Zurich
Downloads 795 (38,171)
Citation 1

Abstract:

Loading...

3.

The Ethics of AI in Biomedical Research, Patient Care and Public Health

Oxford Handbook of Ethics of Artificial Intelligence, Forthcoming
Number of pages: 25 Posted: 17 May 2019
Alessandro Blasimme and Effy Vayena
ETH Zurich and ETH Zurich
Downloads 754 (41,164)
Citation 3

Abstract:

Loading...

Artificial intelligence, machine learning, algorithms, ethics, medicine, biomedical research, public health, bioethics, medical ethics, governance

4.

AI4People - An Ethical Framework for a Good AI Society: Opportunities, Risks, Principles, and Recommendations

Forthcoming in Minds and Machines, December 2018
Number of pages: 24 Posted: 07 Dec 2018
Luciano Floridi, Josh Cowls, Monica Beltrametti, Raja Chatila, Patrice Chazerand, Virginia Dignum, Christoph Luetge, Robert Madelin, Ugo Pagallo, Francesca Rossi, Burkhard Schafer, Peggy Valcke and Effy Vayena
University of Oxford - Oxford Internet Institute, University of Oxford - Oxford Internet Institute, Naver Labs Europe, Sorbonne Université, Digital Europe, University of Umea, Technische Universität München (TUM) - School of Governance - Hochschule für Politik, University of Oxford - Centre for Technology and Global Affairs, University of Turin, Department of Law, University of Padova, University of Edinburgh - School of Law, KU Leuven - Centre for IT & IP Law (CiTiP) and ETH Zurich
Downloads 470 (75,194)
Citation 6

Abstract:

Loading...

Artificial Intelligence, Ethics, Recommendations

5.

Just Global Health: Integrating Human Rights and Common Goods

For T. Brooks (ed.), The Oxford Handbook of Global Justice, Forthcoming
Number of pages: 26 Posted: 23 May 2015 Last Revised: 24 Dec 2015
John Tasioulas and Effy Vayena
King's College London - The Dickson Poon School of Law and ETH Zurich
Downloads 265 (142,411)

Abstract:

Loading...

human rights, health, global health policy, common good, duties

6.

Towards Adaptive Governance in Big Data Health Research: Implementing Regulatory Principles

Laurie Laurie G. (ed.). Cambridge Handbook of Health Research Regulation. Cambridge University Press, Cambridge, UK – Forthcoming.
Number of pages: 24 Posted: 02 Jan 2020
Alessandro Blasimme and Effy Vayena
ETH Zurich and ETH Zurich
Downloads 95 (332,939)

Abstract:

Loading...

big data research, health research, research ethics, governance, adaptive governance, ethics

7.

Is There a Duty to Participate in Digital Epidemiology?

Forthcoming in Life Sciences, Society and Policy
Number of pages: 23 Posted: 01 May 2018
Brent Mittelstadt, Justus Benzler, Lukas Engelmann, Barbara Prainsack and Effy Vayena
University of Oxford - Oxford Internet Institute, Robert Koch Institute, University of Edinburgh, University of Vienna - Department of Political Sciences and ETH Zurich
Downloads 80 (369,959)

Abstract:

Loading...

bioethics, digital epidemiology, social media, public health, surveillance, ethics

8.

Ethical Issues with Using Internet of Things Devices in Citizen Science Research: A Scoping Review.

Authors' version of: Ethical issues with using Internet of Things devices in citizen science research, forthcoming in: Frontiers in Environmental Science (Science and Environmental Communication), DOI: 10.3389/fenvs.2021.629649
Number of pages: 17 Posted: 14 Aug 2020 Last Revised: 03 Feb 2021
James Scheibner, Anna Jobin and Effy Vayena
Flinders University - College of Business Government and Law, Alexander von Humboldt Institute for Internet and Society and ETH Zurich
Downloads 35 (536,882)

Abstract:

Loading...

Internet of Things, IoT, Citizen Science, Participatory Research, Ethics, Research Ethics, Governance, IoT, Privacy, Data Governance, Intellectual Property

9.

Is it ethical to use hacked data in scientific research?

Number of pages: 9 Posted: 12 May 2021
Marcello Ienca and Effy Vayena
ETH Zürich - Department of Health Sciences and Technology and ETH Zurich
Downloads 26 (588,207)

Abstract:

Loading...

ethics, data, hacking, policy, research integrity, cybersecurity

10.

Key Ethical Challenges in the European Medical Information Framework

Edinburgh School of Law Research Paper No. 2021/12
Number of pages: 17 Posted: 29 Apr 2021
Luciano Floridi, Ugo Pagallo, Burkhard Schafer, Christoph Luetge, Peggy Valcke, Effy Vayena, Janet Addison, Nigel Hughes, Nathan Lea, Caroline Sage, Bart Vannieuwenhuyse and Dipak Kalra
University of Oxford - Oxford Internet Institute, University of Turin, Department of Law, University of Edinburgh - School of Law, Technische Universität München (TUM), affiliation not provided to SSRN, ETH Zurich, affiliation not provided to SSRN, affiliation not provided to SSRN, University College London - Institute for Health Informatics, affiliation not provided to SSRN, Janssen Research & Development, LLC and affiliation not provided to SSRN
Downloads 15 (663,987)

Abstract:

Loading...

Data ethics, Medical ethics, Ethics of algorithms, Health ethics, GDPR

11.

Whose Health Record? A Comparison of Patient Rights Under National Electronic Health Record Regulations in Europe and Asia-Pacific Jurisdictions

Singapore Journal of Legal Studies, Forthcoming
Number of pages: 18 Posted: 24 May 2021
James Scheibner, Marcello Ienca and Effy Vayena
Flinders University - College of Business Government and Law, ETH Zürich - Department of Health Sciences and Technology and ETH Zurich
Downloads 2 (766,394)
  • Add to Cart

Abstract:

Loading...

12.

Whose Health Record? A Comparison of Patient Rights Under National Electronic Health Record (Nehr) Regulations in Europe and Asia-Pacific Jurisdictions

Singapore Journal of Legal Studies, Mar 2021, pp 56-75
Number of pages: 20 Posted: 11 Jun 2021
James Scheibner, Marcello Ienca and Effy Vayena
Flinders University - College of Business Government and Law, ETH Zürich - Department of Health Sciences and Technology and ETH Zurich
Downloads 0 (794,867)
  • Add to Cart

Abstract:

Loading...

13.

Caught in the Web: Informed Consent for Online Health Research

Science Translational Medicine, Vol. 5, No. 173, pp. 1-3
Posted: 31 May 2013 Last Revised: 02 Oct 2017
Effy Vayena, Anna C. Mastroianni and Jeffrey P. Kahn
ETH Zurich, University of Washington - School of Law and Johns Hopkins Berman Institute of Bioethics

Abstract:

Loading...

informed consent, bioethics, medical research, research ethics, social media, informatics, big data, privacy

14.

Ethical Issues in Health Research with Novel Online Sources

Downloads 0 (794,867)

Ethical Issues in Health Research with Novel Online Sources

American Journal of Public Health, Vol. 102, No. 12, pp. 2225-30
Posted: 03 Nov 2012 Last Revised: 20 Sep 2014
Effy Vayena, Anna C. Mastroianni and Jeffrey P. Kahn
ETH Zurich, University of Washington - School of Law and Johns Hopkins Berman Institute of Bioethics

Abstract:

Loading...

data mining, social networking, bioinformatics, research ethics, health data sets, search volume patterns, genetics, privacy, informed consent

Ethical Issues in Health Research with Novel Online Sources

American Journal of Public Health 102(12): 2225-30, 2012
Posted: 03 Aug 2014 Last Revised: 03 Sep 2014
Effy Vayena, Anna C. Mastroianni and Jeffrey P. Kahn
ETH Zurich, University of Washington - School of Law and Johns Hopkins Berman Institute of Bioethics

Abstract:

Loading...

health research, online research, research, online, ethics